516-900-GENE (4363) info@greygenetics.com

A Fatal Family Disease & the Flip of a Coin

Rachelle Dixon shares her story of growing up around “the family disease,” eventually diagnosed as HSAN1E — a rare, hereditary, degenerative neurological condition that claimed the lives of her mother and two of her siblings. Rachelle is the President and Co-Founder of the HSAN1E Society, an advocate for rare diseases, and a frequent speaker on caregiving for individuals with rare diseases.

Listen on Spotify, iTunes, SoundCloud, Google Play, or Online. 

%d bloggers like this: