Fighting for Sons with Duchenne

Jenn McNary is a mother of four, two of whom—Austin and Max—were diagnosed with Duchenne Muscular Dystrophy (DMD), a progressive, X-linked genetic condition affecting muscle function. In this episode, Jenn shares what it is like to parent two sons with DMD simultaneously, how she and her family have navigated the profound emotional and medical terrain of the disease, and the fierce advocacy work she has taken on to push for better treatments and research. Jenn became a prominent voice in the DMD community and her story helped shape access to emerging therapies.