Learning Compassion through Rett Syndrome

Tiana Vega was born in May 2013. She was later to hit her milestones than her older sister, Aliya — but she kept hitting them. At 2 years of age, she finally learned to walk. Then she started to regress. When she was 2½ years old, she was finally diagnosed with Rett syndrome, an X-linked and progressive neurological disorder. Victor and Jeannette share their experience with receiving a genetic diagnosis for their daughter, how Tiana has impacted their life, and how they’ve found connection in the Rett syndrome and rare disease communities.