Research Opportunities
A national NIH-led effort to gather data from one million or more people in the US to accelerate research and improve health. Open to anyone currently living in the United States.
A survey-based study on individuals' experiences with direct-to-consumer genetic testing. Open to anyone who has purchased a DTC genetic testing kit or is at any stage in the testing process.
An opportunity for volunteers to contribute to stem cell research. Must visit Manhattan location to provide a sample.
A new NIH study recruiting people who received unexpected genetic test results about their risk for cancer, heart disease, and other conditions after genetic testing done for some other reason.
A database of privately and publicly funded clinical studies conducted around the world.
An online registry by ClinGen for people interested in sharing de-identified genetic and health information. Open to anyone who has had genetic testing, is considering testing, or has a family member who has had testing.
A multi-center research consortium focused on the early detection of pancreatic cancer in individuals at elevated risk due to family history or known genetic variants. Offers pancreatic cancer surveillance studies to eligible high-risk individuals.
An NIH-funded study investigating how to help families with Hereditary Breast and Ovarian Cancer (HBOC) syndrome or Lynch syndrome share genetic test results with relatives and support cascade testing. Open to individuals with a confirmed BRCA1, BRCA2, or Lynch syndrome diagnosis and untested first-degree relatives. Includes access to free genetic education and optional testing for relatives. and no-cost genetic counseling for some study arms.
An NIH-funded randomized trial testing a web-based genetic education intervention designed to help at-risk relatives of individuals with BRCA1 or BRCA2 mutations understand their risks and access genetic testing. Open to individuals diagnosed with a BRCA1 or BRCA2 mutation within the past year who have untested adult relatives, and to the relatives themselves (ages 21–75). Includes optional free genetic testing and a $25 gift card for participation.
A global research initiative offering free genetic testing and genetic counseling to people diagnosed with Parkinson's disease. Participants receive results for clinically relevant PD-related genes and contribute to advancing research into the genetic and biological factors behind Parkinson's. Available online or in person; available in English and Spanish.
A Phase 2 clinical trial evaluating NEU-411, an investigational treatment targeting overactive LRRK2 enzyme activity in people with early Parkinson’s disease. Eligibility requires a PD diagnosis and no current use of most PD medications (including levodopa and dopamine agonists) — making timing critical: people newly diagnosed who have not yet started most treatment may be eligible before medication is initiated.